Tristan, Rare Disease

Feb 28, 2023

“Tristan was diagnosed with Eosinophillic Esophagitis four years ago. Eosinophillic Esophagitis (EoE) represents a chronic, immune/antigen-mediated esophageal inflammatory disease associated with esophageal dysfunction resulting from severe inflammation. Before Tristan was diagnosed with EoE, I would notice him getting choked while eating certain foods, mostly dairy products. Tristan also would show signs that his throat and stomach was hurting after eating dairy products. He now takes an acid blocker to help with his symptoms. We also try to stay away from dairy products to help. Tristan refuses to let any obstacle hold him back from living his life to the fullest, especially EoE.

In addition to his rare disease, Tristan also has Cerebral Palsy. Cerebral Palsy is a developmental disability that affects movement, posture, and coordination. Tristan was diagnosed with CP at birth. Due to Tristan’s condition, he is nonverbal, and his condition also affects his ability to walk. Cerebral palsy can be a barrier for everyday activities, but Tristan attends occupational therapy, physical therapy, and speech therapy weekly to help make best out of any obstacle that comes his way. Tristan uses a speech device called the Tobii device to help with communication. Tristan also has a gait trainer and wheelchair to help with his mobility issues. Even with Cerebral palsy, Tristan stays determined and focused on exceeding in life.

Tristan is an outgoing, loving, strong, empathetic young man. Tristan’s drive and determination to do everyday activities motivates everyone around him. He can brighten up any room he’s in with his wonderful personality. He strives every day to be a great young man.

The Kidz Club has had a huge impact on Tristan’s life. He can spend time with his peers that share some of the same disabilities as him. Tristan enjoys attending The Kidz Club. It helps with his social skills and keeps him motivated to overcome any obstacles he faces due to his disability. We are so grateful that he gets to attend a facility that’s dedicated to special needs children.”

-Brittany, Mother


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